The Research Department at Project Hope oversees the design, conceptualization, and execution of all research-related efforts across the organization. Our work helps ensure that the programs we offer are impactful, equitable, and grounded in both lived experience and evidence-based best practices. We prioritize collaborative and informed research design that uplifts the voices of pediatric and young adult transplant recipients.

Our team is responsible for developing studies, designing surveys, writing grant applications, preparing IRB protocols, and analyzing data related to program effectiveness and participant outcomes. We collaborate closely with the Technology & Media team to distribute surveys safely and accessibly, and partner with outside researchers to build a strong foundation for academic rigor and future publication. Above all, we believe research should be accessible, empowering, and actionable

Current Projects:

• Designing QI and participant feedback surveys.
• Choosing and implementing validated tools.
• Collaborating with outside researchers on longitudinal peer mentoring studies.

For Volunteers:

We welcome volunteers of all experience levels who are curious, compassionate, and ready to contribute to our research team. We’re especially looking for folks with interest or experience in:

Survey design or implementation

Statistics or data analysis

IRB navigation or clinical research

Health equity or social science research

Grant writing and research translation

Contact Us:

For more information on volunteering or participating in our research initiatives, please reach out to our research lead, Sophie Hansen, at sophie.hansen@imail.org. For general Project Hope questions, email infoprojecthopetransplant@gmail.com.